About the Developmental Disabilities Data

This page provides general information about the developmental disabilities data and measures developed by the Minnesota Environmental Public Health Tracking (MN EPHT) Program. For more information about these data, contact the Data Access portal.

Information on this page:

What do these data tell us?

  • The estimated prevalence of children in the general population with certain development disabilities; the estimated prevalence of children with special health care needs with certain developmental disabilities; the number and percent of children receiving special education and related services for certain developmental disabilities.

How can we use these data?

  • To inform the public about certain developmental disabilities.

What can these data not tell us?

  • What causes developmental disabilities.

What is the source of the data?

  • Estimated prevalence of certain developmental disabilities.
    • This indicator uses data from the National Survey of Children's Health and the National Survey of Children with Special Health Care Needs, two telephone surveys conducted by the National Center of Health Statistics at the Centers for Disease Control under the direction and sponsorship of the federal Maternal and Child Health Bureau.
    • Survey results are weighted to represent the population of non-institutionalized children ages 0-17 nationally and in each state.
    • Survey data sets used in the analysis were prepared by the Data Resource Center for Child and Adolescent Health, Child and Adolescent Health Measurement Initiative.www.childhealthdata.org
  • Children receiving interventions or services
    • This indicator uses data collected by the U.S. Department of Education (ED) for the purpose of monitoring state compliance with the Individuals with Disability Education Act. IDEA directs how states and public agencies provide early intervention, special education, and related services to eligible children with disabilities. Every year, states are required to submit data to the ED Office of Special Education and Rehabilitative Services on the number of children with disabilities receiving special education and related services.
    • Data are from IDEA Part B Child Count data of children ages 3-17 receiving services as of December 1 of every year.
    • Census data is used to calculate percent of children receiving services.
    • IDEA data on 13 difference disabilities are available on www.ideadata.org.

What are the limitations of the data?

  • National Survey of Children's Health and the National Survey of Children with Special Health Care Needs
    • Data not at county level
    • Questions change over time
    • Survey not conducted yearly
    • Small sample sizes for each condition
    • Parental report of health
  • Individuals with Disability Education Act (IDEA)
    • Not prevalence, but number of children receiving interventions or services
    • Classification reflects service needs rather than diagnostic category that might be applied by a health professional

Where can I find more technical information about the data?

For more information about the data and measures developed by the MN Environmental Public Health Tracking Program, contact the Data Access portal.